Posts in General
270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig)

We’re excited to have April Rehrig, founder of Rise Educational Advocacy and Consulting, on this week! With over 20 years of experience as an elementary school teacher and school psychologist, April has spent her career empowering parents and students to achieve the best educational outcomes. From understanding the IEP’s purpose to advocating for your child’s unique strengths, April provides actionable tips on communicating effectively, collaborating with school teams, and resolving conflicts. Whether it’s your first IEP or your fifth, April’s advice will help you navigate the process confidently and clearly. Friends, we were taking notes this entire interview! Tune in to learn how to make your voice heard and ensure your child’s strengths and interests are front and center this school year.

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269. What Are We Really Measuring?: Redefining Worth & The IQ Test (w/Pepper Stetler)

Today we’re excited to talk to Pepper Stetler about her new book A Measure of Intelligence: One Mother's Reckoning with the IQ Test. She’s sharing her journey of questioning the authority and relevance of the IQ test after learning that her daughter, Louisa, who has Down syndrome, would be required to take it regularly to receive support in school. We’re chatting about the unsettling history of the IQ test and how its contributed to everything from ableism to terms used by schoolyard bullies. Join us as we dive deep into this important conversation about how we define (and assume) intelligence, the impact of these tests on our education system, and what it truly means to understand an individual's potential. This is a conversation (and book!) you don’t want to miss!

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268.  First Responders and Teacher of Patience: A Lesson in Understanding

We’re thrilled to have Carmen Vincent and Tom and Tina Felter join us to discuss their powerful Emmy award-winning documentary, Teacher of Patience. This film showcases the incredible journey of the Felter family and their daughter, Emily (who makes a surprise appearance!), who has Down syndrome. Tom shares the story behind developing The Emily Talk, a crucial presentation aimed at educating first responders about disabilities to prevent unnecessary tragedies, and how it led to meeting Carmen. We’re chatting about the process of making a documentary, their hopes for the film, and how it can impact the broader conversation of disability and inclusion. Join us as we explore how this inspiring story is making an impact. This is another episode you don’t want to miss, friends!

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267. What Is It Like To Have A Sibling With Down Syndrome? (Featuring Our Kids!)

Friends, the last two weeks we got to hear from some amazing siblings. Today we hope you’ll join us for a very special episode, we're sitting down with our kids to talk about what it's like to have a sibling with Down syndrome. Micha chats with Ace’s older brother Brooks (13), Mercedes sits down with Sunny’s younger brothers Rhodes (9) and Shepard (7), and Heather with Macy & August’s sister Truly (13)! They’re sharing the things they love to do with their siblings, the advice they’d give other kids who have a brother or sister with Down syndrome, and so much more! From the everyday moments to the life lessons learned, we're sharing it all in these candid conversations with our kids. Listening to the way they describe their relationship with their siblings and the beautiful connections they each have makes us all appreciate the unique bonds that define our families even more. This is an episode you don’t want to miss!

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266. From Sibling Love to Community Change (w/Taylor Gardner Chaney)

Today we’re chatting with another amazing sibling! Taylor Gardner Chaney is a passionate entrepreneur whose younger sister with Down syndrome has influenced her understanding of disabilities and guided her career choices. Taylor discusses viewing life as a series of seasons and how focusing on the "why" behind her work helps her push through challenging times. We explore the realization that siblings with disabilities often don't have the same choices and opportunities as those without, and how this awareness has shaped Taylor's perspective. She’s sharing her journey advocating and her “why” behind starting The Garden Foundation LV, which provides resources and opportunities for individuals with disabilities. Friends, this is an episode packed with advice on sibling relationships, entrepreneurship, inclusion, and the power of community. This is another episode you don’t want to miss!

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265. Brotherly Love: From Childhood Adventures to Adult Dreams (w/Matthew & Thomas Von Der Ahe)

Today, we're thrilled to chat with Matthew Von Der Ahe, known for his roles in 'Champions' and other films. Joined by his brother Tommy, they reminisce about childhood, explore their evolving adult relationship, and discuss maintaining their strong bond despite living apart. Matthew, an actor recognized for his work in 'The Secret Lives of Dorks' and ‘Code Black, is also active in the arts community and charity initiatives. Meanwhile, Tommy, a robotics enthusiast and former Loyola High School rower, lives in Dallas, staying close to Matthew through FaceTime and visits. Their supportive dynamic shines as they share stories of family (18 cousins), pulling pranks, funny viral posts, sibling love, and mutual encouragement - they are each other's HYPE MAN.

This episode celebrates their unique sibling bond and shared understanding of what it means to shift the narrative through enduring family ties. It's a good one, friends.

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264. Healing and Hope: Navigating Down Syndrome Regression Disorder (w/ Dr. Santoro & Dr. Quinn)

Today, we're chatting about the mysterious and challenging world of Down Syndrome Regression Disorder (DSRD). This condition has left many parents searching for answers as they witness profound changes in their children. Joining us are two leading experts, Dr. Jonathan Santoro and Dr. Eileen Quinn, who will share their insights and experiences from the frontlines of diagnosing and treating DSRD. Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program and Director of Research for the Neurologic Institute at Children’s Hospital Los Angeles. He also has clinical research expertise in DSRD. Dr. Quinn serves as the Medical Director of the Down Syndrome Clinic at ProMedica Ebeid Children’s Hospital in Toledo. Dr. Quinn is also the mother of four perfect daughters, the youngest of whom, Sara, has Down syndrome. They’re helping us understand the symptoms, treatment options, and the ongoing fight to understand this perplexing disorder. Friends, we’re glad to bring this important conversation to everyone’s attention.

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263. Designs that Dance: A Tale of Friendship and Creativity (w/Dance Happy Designs)

Today, we’re chatting with the creative minds behind Dance Happy Designs! Emily Scott is here to chat with us about the power of inclusive entrepreneurship, friendship, and creativity and share some of co-founder Julia’s thoughts on their friendship and partnership, plus what her favorite design is! Emily shares their experiences creating high-quality, amazing designs and fostering an inclusive movement that centers and honors people with disabilities. Hear about their achievements, including being named a Tory Burch Foundation fellow, securing deals with Nordstrom and Aerie, and their commitment to collaborating with the Down Syndrome community. Plus, we hear about some new products AND they share an exclusive discount with our listeners!

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262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard

We’ve been so grateful to have had the opportunity to collaborate with National Down Syndrome Society (NDSS) over the last few years. Today, we’re chatting with Kandi Pickard, the President & CEO of NDSS, and celebrating their 45th Anniversary coming up on June 20th! Kandi is sharing the organization's journey from a support group that has grown into a major policy and advocacy organization, she shares her experience from becoming a volunteer to taking over as President & CEO, and what the future holds for NDSS! We chat about the honor of learning from and advocating alongside self-advocates, and the commitment NDSS has to representing the beauty and diversity of the Down syndrome community. We’re so grateful for the vital work they do to support and create opportunities for the community, tune in and be inspired by Kandi’s dedication and vision for the future of NDSS!

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261. Fearless Together: Lessons In Bravery, Hope, & Resilience (w/David and Andrew Olshine)

Join us for a special Father’s Day episode featuring the dynamic father-son duo, David and Andrew Olshine! They share their inspiring journey of writing and publishing the book Fearless As A Honey Badger, Brave Like A Wolverine. Learn about the lessons they've learned, the message of hope and resilience they aim to share with the world, and how Andrew’s remarkable recovery from Guillain-Barré syndrome inspired him to write the book. They also discuss the inspiration behind the powerful quotes included in the book, drawn from movies, Eleanor Roosevelt, Nelson Mandela, and Bible verses. Enjoy an excerpt read by Andrew himself and hear about his plans for his next book. This is a fun and heartfelt episode you don’t want to miss!

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260. What Did We Learn From This School Year?

Cheers to making it through another school year! Join us as we share our experiences, celebrate the successes, and learn from the challenges of the 2023-2024 school year. Discussing everything from what types of supports and settings worked for our kids, to the injustices in our education system and the reality of our kids still leading the way in 2024. We hope you’ll join us as we reflect on the good and the hard another school year has brought. Remember friends, we’re cheering you on every step of the way!

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259. Home Is Our Classroom: Homeschooling A Child With Down Syndrome

Friends, we know there are so many ways to learn, join us today as Mercedes chats with fellow homeschool mama Rachel Prescott about what it's like to homeschool kiddos with (and without!)  Down syndrome. Mercedes has homeschooled her daughter Sunflower who has Down syndrome and her three boys for over five years now, Rachel who has twin six-year-old daughters Nettie and Lottie who have Down syndrome, and two boys ages 8 and 10. They share what an average homeschool day looks like for them, the benefits they’ve seen for their families, resources they’ve found helpful, and so much more! Learn how co-ops, standardized testing, and therapies have played a role in their journeys so far, and what kinds of activities their kids have participated in. Whether you’re considering homeschooling or are just curious about what a day in the life of a homeschool mama looks like, this episode is one you don’t want to miss!

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258. Unlocking Potential: Strategies For Every Learner With Down Syndrome (w/Mrs. Brown)

Friends, we’re so excited to be joined by Mrs. Brown today, you’ve heard us mention her many times over the years! She has developed a successful and innovative program that teaches reading and other academic skills to learners ages three to adult. We learned about her passion and gift for teaching individuals with Down syndrome in 2018 and had her on the show during our first season. Today, she’s back to talk about her program, “So Happy To Learn,” to share memorable teaching moments, give us tips and strategies for every learner, and so much more! We know we’re headed into summer breaks and vacations, today our episode is packed with tips for summer learning and lifelong learners. As Mrs. Brown says, “Learning is continual!”

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257. Brother, Do You Love Me?: A Journey of Resilience and Repair (w/Manni & Reuben Coe)

Friends, today we have Manni and Reuben Coe, two remarkable brothers from the UK, who are here to share their deeply moving journey and new book, brother. do. you. love. me. Their story is one of extraordinary resilience, heartwarming repair, and the profound rediscovery of brotherly love. These magical brothers remind us of the power of love and resilience. Their story is not just about overcoming obstacles; it's about finding strength in vulnerability, embracing hope in the face of adversity, and discovering the true meaning of brotherhood. This book and interview truly filled our hearts to the brim, grab a few tissues, this is an episode you don’t want to miss! 

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256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association)

Friends, we put, “I’m A Really Good Mom” on a t-shirt because we know moms doubt this truth about themselves daily. Today in honor of Mother’s Day we’re celebrating the importance of community, friendship, and advocacy with our friends Kelli Caughman and Crystal Lotterberry! Kelli & Crystal are the founders of the Black Down Syndrome Association and they’re here to have an unfiltered conversation about the messy and beautiful parts of being a mama! We're chatting about how Down syndrome has influenced our perspective on life and motherhood, our advice for those feeling overwhelmed, what we shouldn’t have worried about (or if we ever worried), and so much more! Being a mama is the hardest and best, we want you to know you’re doing a good job. Now say it with us, “I’m a really good Mom!”

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