264. Healing and Hope: Navigating Down Syndrome Regression Disorder (w/ Dr. Santoro & Dr. Quinn)

Today, we're chatting about the mysterious and challenging world of Down Syndrome Regression Disorder (DSRD). This condition has left many parents searching for answers as they witness profound changes in their children. Joining us are two leading experts, Dr. Jonathan Santoro and Dr. Eileen Quinn, who will share their insights and experiences from the frontlines of diagnosing and treating DSRD. Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program and Director of Research for the Neurologic Institute at Children’s Hospital Los Angeles. He also has clinical research expertise in DSRD. Dr. Quinn serves as the Medical Director of the Down Syndrome Clinic at ProMedica Ebeid Children’s Hospital in Toledo. Dr. Quinn is also the mother of four perfect daughters, the youngest of whom, Sara, has Down syndrome. They’re helping us understand the symptoms, treatment options, and the ongoing fight to understand this perplexing disorder. Friends, we’re glad to bring this important conversation to everyone’s attention.

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SHOW NOTES

• Read The Washington Post article featuring Dr. Santoro and Dr. Quinn

• Regression in Down Syndrome Facebook group

• Information on Down Syndrome Regression Disorder Facebook Group

• Additional resources from the National Down Syndrome Society (NDSS)

• Learn more about DSRD

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