205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko
Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
CONNECT WITH THE PODCAST
CONNECT WITH HEATHER AVIS
WEBSITE: THE LUCKY FEW OFFICIAL
CONNECT WITH MERCEDES LARA
CONNECT WITH MICHA BOYETT
IG: MICHABOYETT
LISTEN TO THE SLOW WAY
SHOW NOTES
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
74. Building Brain Power in People w/Down Syndrome, ft. Dr. Brian Skotko
77. Back to School or Back to the Screen? (Covid-19 & the Upcoming School Year ft. Dr. Spinazzi)
109. Let's talk about the Covid-19 Vaccine - ft. Dr. Spinazzi
129. How To Keep Your Kids with DS Healthy While Traveling ft. Dr. Spinazzi
Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!
LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.
HELP US SHIFT THE NARRATIVE
Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!