185. What if my child with Down syndrome can't?

We had SO much fun celebrating Down Syndrome Awareness Month in October. We featured many wonderful self-advocates who are shifting the DS narrative in big ways. And we’re so excited for all of them. But if you’re a parent of a child with DS who felt a little lost, sad, and maybe even lied to this past month.. then this episode is for you. We’re chatting about what happens when your child with Down syndrome doesn’t achieve all the things our society celebrates. Are they still worthy? Where does our value come from if not accomplishments? Our kids have been the greatest invitation to see the worth in others (and ourselves) apart from achievements.. and today we’re talking about why. We’re also chatting about how to share content about our children in honorable ways and how to receive content about other people’s children without comparing. Plus we’re exploring the “dark side to positive representation” that causes us to only celebrate people with DS who act the most like people without DS. WOW! So much to unpack here, friends. It’s a good one.