EPISODES

Friends, we had so many incredible conversations in 2023, before we kick off a new season we’re throwing it back to some of our favorite episodes as we get excited to hit a milestone of ONE MILLION DOWNLOADS in 2024!

Today we’re talking about the differences between Guardianship, Conservatorship, and Supported Decision-making. We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.

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Friends, we had so many incredible conversations in 2023, before we kick off a new season we’re throwing it back to some of our favorite episodes as we get excited to hit a milestone of ONE MILLION DOWNLOADS in 2024! On this week’s episode, we’re celebrating with a candid conversation about connecting with your child with Down syndrome! We know how important making meaningful connections with our kids is, today we’re talking all about nurturing those connections. What we’re doing to develop the relationships with our kiddos, learning new ways to give and receive love, and so much more!  And we might even have a surprise performance by none other than our very own Micha Boyett performing her original score of a still untitled Mother’s Day song. We hope all you lucky mama’s out there know we love you, and as always, we’re cheering you on!

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Friends, we had so many incredible conversations in 2023, before we kick off a new season we’re throwing it back to some of our favorite episodes as we get excited to hit a milestone of ONE MILLION DOWNLOADS in 2024!

We’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.

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Friends, we're kicking off the new year with a bang! In our exciting sixth-season premiere, join us as we dive into the festivities, reflections, and dreams that come with the arrival of 2024.

Join us as we delve into our goals for 2024, both for our families and The Lucky Few Podcast community. Advocacy, inclusion, friendship, hope – these are the themes we're exploring and continuing to champion. We share our dreams of making this community even bigger and better, and we express our gratitude for the best listeners on the planet.

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And just like that, we’re wrapping up our 5th season! 2023, what a year! We’re coming close to ONE MILLION DOWNLOADS, we had listeners in 36 countries, and 64% of listeners discovered us this year! Welcome new and old friends, we’re glad each and every one of you is here, shouting worth and shifting narratives for people with Down syndrome! We’re so grateful we get to connect and have so many incredible guests and conversations on the show. Today, we’re reflecting on the incredible conversations we’ve had this year!

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Friends, grab your workout pants because this episode is all about the positive effects of health, and wellness, and how fitness is for everyone—especially our loved ones with DS. We’re thrilled to talk with TruFit’s founders, John & Adam White, on the show! Today they share how in 2010, they identified an unmet need within the fitness community, prompting them to establish TruFit Adaptive Fitness. Thirteen years later, their solution is clear: TruFit Adaptive Fitness uses technology to provide fitness solutions for people with intellectual and developmental disabilities, and today they share the vision that fitness is for everyone. 

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There are so many feelings when we enter spaces alongside our loved ones with Down syndrome and disabilities. The question, “Is there such a thing as a difficult parent?” It made us think deeply about advocacy, boundaries, and how gender, race, and cultural stereotypes can play a role in this question. What does it mean to advocate? What is your job as your child's advocate? If you make people uncomfortable does that make you difficult or does that make you an advocate? Is there a way around advocating and not being labeled a difficult parent? Friends, you’re not going to want to miss our conversation on this hot topic!

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Friends, we’re so excited to have licensed therapist and grief expert, Claire Bidwell Smith on the show to give us some tools and resources for coping with the grief that comes with a Down syndrome diagnosis. Led by her own experiences with grief, and fueled by her work in hospice and private practice, Claire strives to provide support for all kinds of people experiencing grief and is devoted to expanding the conversation around grief and loss. We’re chatting about tools and strategies for grief around a diagnosis, grieving a life we’d imagined for our loved one, managing anxiety around medical issues that can come with a Down syndrome diagnosis, and so much more. No matter where you are in your journey, we want you to know, that you’re not alone. We hope this episode provides some helpful tools, strategies, and support.

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Happy, sad, angry, frustrated, excited, it’s not always easy to know how to express these feelings, especially for our kiddos with Down syndrome. Today we’re talking about all those “big feelings” that can be hard to regulate at times. We’re chatting about how we’ve been working on helping our kiddos handle all those “big feelings” and so much more. How we’ve had to become a “detective” of our kiddo's feelings and learned to recognize how some of them can be affected by nutrition, sleep, activity, etc. Navigating emotions isn’t easy for anyone, putting these feelings into words can sometimes be even harder. Learning what tools have been helpful for our kiddos to express and feel understood has been essential, especially entering those teen years! Friends, this is an episode you don’t want to miss!

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Oprah’s favorite things are legendary, just like our gift guide- prepare to unwrap some magic with our 2023 gift ideas! We’ve got some rad ideas for everyone on your list from gifts for kiddos, grandparents, spouses, teachers, and more! Friends, we’ve scoured the corners of creativity and combed through countless options to find the perfect gifts for this years list. From functional, to educational, to downright stylish, and something to wrap it all up with, we’ve got you covered. You know we can’t resist some fun holiday stories with memories of the worst gifts we’ve ever received. Grab a cup of cocoa, sit back, and relax because The Lucky Few Podcast 2023 Holiday Gift Guide has you covered!

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Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!

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Friends, thank you for celebrating Down Syndrome Awareness Month with us! Today we wrap up our celebration with self-advocates Craig Blackburn & Heather Hancock-Blackburn. This power couple is talking all about love at first sight, marriage equality, long-distance relationships, and so much more! From shifting narratives to building careers, and competing in Special Olympics across the country these incredible self-advocates have so much to be proud of. Heather’s Mom Lisa and Craig’s Mom Pat join us to share what it was like as parents to witness their love story and advice for parents and caregivers. Craig & Heather you had us at hello, we just love your love! You don’t want to miss this epic celebration of love, self-advocacy, and equality.

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Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have artist, entrepreneur, and soon-to-be Aunt, Grace from Grace Place Art! Grace and Mom Bonnie join us to share about their journey starting a small business and the projects they’ve been working on. What started as a fun project of creating original artwork for family has become an online business, collaborations, and opportunities to give back. Grace and her Mom are passionate about empowering others and have spoken to classrooms around the world! When Disney’s Pixar commissioned a piece of artwork, Grace and her parents decided on the perfect character that they felt connected to their own journey. From becoming a boss lady to giving back, to preparing to be an Aunt, and so much more, this is an episode you don't want to miss!

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Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a VIDEO version of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!

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