EPISODES

Meet Sara and Sabrina. They are mothers raising children with Down syndrome who have made it their mission to use social media to educate fellow lucky mamas on feeding strategies. And today, they’re here to answer all of our questions about feeding our children with DS — and there’s plenty to discuss! So if you’ve ever wondered about baby lead weaning, breast feeding support, and advocating for your child in the medical space, this is the episode for you! Where ever you are in your feeding journey, remember that you know your child the best, and you are doing amazing.

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The last thing Wendy Lacey thought she would do is open a general store in the middle of downtown Montclair, New Jersey. But after raising her daughter with Down syndrome and realizing that “once you finish high school, there’s a cliff to fall off” for students with disabilities, she knew she needed to create an inclusive space for employment. And that’s how Cornerstone General Store came to be. Wendy’s goal is to reflect the diversity of the real-world and that’s why she hires individuals with and without disabilities to work alongside each other and learn from one another. So friends, join us for this chat all about this vibrant New Jersey hub of community and inclusion. You might just be inspired to start something similar yourself!

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If you’re like us, you may have felt the need to take control and schedule ALL the therapies once you received your child’s DS diagnosis. Suddenly, you’re spending most of your time driving to different appointments and constantly wondering how you can give your child all the opportunities they need. But, it doesn’t have to be that way. There’s another way to parent your kiddos with Down syndrome.. the third way. Because we believe in interventions and giving your child opportunities and we also understand that some seasons are meant for more.. or less. So friends, don’t miss out on this conversation all about what we’re calling The Third Way.

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Friends! We are so excited to introduce you to Johanne Meyer! She’s an adult woman with Down syndrome, mentor at a community college, and (maybe most importantly) a dog mom! When she’s not spending time educating and encouraging college students with disabilities, she’s volunteering at a dog rescue, or recording episodes for her own podcast: Inclusive Views! We’re so grateful she joined us today to chat all about what it’s like to be a self-advocate and what to keep in mind when supporting your loved ones with DS!

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Have you ever gone to a birthday party, a summer BBQ, or a coffee shop and just felt your shoulders up the entire time? Maybe you even noticed that your child has their shoulders up too.. But have you ever been to a meet-up with other families who have kids with Down syndrome? You can let your shoulders down in these spaces where you know your people just get it. That’s why it’s so important to find your people. And we’re chatting all about HOW to find your people in today’s episode. It might be hard work, but take it from us - it’s so worth it.

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When Jeremy’s family realized that he needed a place to live at age 22, they visited a few local group homes, and soon realized, this model just wasn’t the right fit. So he created Cohome, an inclusive living program where individuals with and without disabilities live in beautiful homes designed to foster independence, build community, allow individualized support as needed for each resident. And in case it’s not clear in the episode.. we are obsessed with this housing model! Micha and Ace walk by Cohome each day being a New Jersey neighbor! She’s gotten to know the place quite a bit, and today her and Nathaniel are chatting all about this model of inclusion, how residents (and their parents) feel during their transition to Cohome, and so much more. You do not want to miss this one, friends!

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Friends! “Different— A Great Thing To Be” by Heather Avis is out right NOW, and we’re celebrating with a very special interview featuring none other than the entire Avis crew! That’s right, Heather is joined by her husband Josh and their three kiddos, including Macy— the star of the book (who also happens to be turning 13 on it’s release day). And if you’ve been listening for a while, you know about the goal for Macy to read this book on her own.. well, she’s been practicing for months and let’s just say, this book sounds even better coming from her! So don’t miss this special episode and don’t miss out on this book! “Different— A Great Thing To Be” is a great tool for your kiddos to learn to celebrate differences and we cannot wait for you to read it with them! Click HERE to get your copy today!

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Happy Father’s Day to all you dads out there shouting the worth of your kiddos! We’re here today with a very special episode from a couple of our favorite fathers (but we might be biased) - Josh and Chris! That’s right, Micha and Heather’s husbands are taking over to chat about all things fatherhood. And they’re not holding back! They’re here to share advice for new dads, how they support their wives, and the practical ways they advocate for their kiddos (at work and off-line!). And if you’ve ever felt like you’re just trying to get through all the hard stuff in the day.. Josh and Chris have some advice for that too. Happy father’s day to all of you dads learning from your kiddos each day! We see you and celebrate you!

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You might have seen the popular social media trend where people describe a relatable situation and others know exactly what they’re talking about - or at least that’s what we think it means.. So we’re here with a fun game of “tell me you’re raising a child with Down syndrome without telling me you’re raising a child with Down syndrome.” If you are parenting a kiddo w/DS, you might relate to the endless amounts of abbreviations you have to learn (OT, PT, ABA, the list goes on), the feeling you get when watching your child run for the first time, and maybe even buying extra locks for the bedroom doors! We love this community and all the little instances that bind us together.. especially what it feels like to hug your baby with DS! Enjoy the episode, friends!

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Elana Meyers Taylor is a three time Olympic medalist and a two time women’s world champion (woah!) in bobsledding. She also happens to have the cutest little training buddy.. her son Nico, who has Down syndrome! Elana gave birth as the pandemic began and between receiving Nico’s diagnosis and raising a baby in the middle of quarantine (all while continuing to train for the Olympics) her journey has been anything but typical! We’re so proud to advocate alongside Elana! Enjoy this interview.. and be sure to cheer her on in the 2022 Winter Games!

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We love our friends with Down syndrome (many of whom have been on this show) who are doing BIG things in the world! But what about the people with DS who aren’t running marathons or starring in movies? Does society see them as important too? Or does our world only see people with DS as valuable when they accomplish something big? There is a lot to explore here. That’s why we sat down and chatted with Justin Hawkins, a PHD candidate at Yale University, a sibling to Jenna, his sister with Down syndrome, and the author of “Dignity Beyond Accomplishment.” We’re talking about growing up with Jenna, ableism and acceptance, and why he wants to “severe the connection between dignity and accomplishment all together.”

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When Oliver and Hilda Bernier began filming what they thought would be a documentary about inclusive education, they couldn’t have predicted the end result. Now, their film “Forget Me Not” just premiered as the headliner of the Human Rights Watch Film Festival in New York, and for good reason. “Forget Me Not” is the incredible story about the rights of disabled students in New York's public schools, told through the personal journey of one family: Hilda, Olivier and their son Emilio, who has Down syndrome. It follows them step by step as they battle with the NYC Department of Education and it’s policy of segregating students with disabilities.

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If you’re anything like us, then the thought of your child’s financial future might be a little (okay a LOT) scary. But it doesn’t have to be, thanks to Catherine Beck and the MANY parents who advocated for The ABLE Act for over 10 years before it was finally passed into Congress. The ABLE Act ensures that people with disabilities can save money in a tax advantage account for necessary supports such as transportation, education, therapy, assistive technology, and more. We’re so grateful for the many people that made this act happen, and especially Catherine Beck. She’s here today to discuss what the ABLE accounts mean for our children and how the ABLE Act made history in Congress (in more ways than one).

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If you have a loved one with Down syndrome, you’ve probably heard about low muscle tone, gross motor skills, physical therapy, and more.. but what does it all mean!? Do all children with DS need physical therapy? When do we start? When do we stop? So many questions! That’s why we are so grateful to be joined by Dr. Emily Heisey, a pediatric physical therapist, and the owner of kinesiokids.com! We’re chatting about the importance of starting PT early, how often your child might need PT, and how to build even just 20 minutes of exercise time into your child’s daily routine! You’ll want to take notes on this one.

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Hello and happy (early) mother’s day to you all! We are celebrating with a very special treat.. our OWN mamas have joined us for this episode to chat all about being grandparents to children with Down syndrome. They’re sharing their initial reactions to learning of the DS diagnosis/adoptions, what they wish they knew in the beginning, and what they’ve learned so many years later. We’re sending love to all the mamas and grandmas in this space today. And we just want to say that we know this day isn’t easy and light for everyone.. no matter where you are in your motherhood journey, we see you, we love you, and we are cheering you on.

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