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22. Owning Your Influence in Down Syndrome Spaces with Jen Jacob

“Congratulations! You’re going to have a baby with Down Syndrome..” the words Heather dreams a doctor would say when delivering a Down Syndrome diagnosis. Thankfully, fierce advocates like Jen Jacob are here to make that vision a reality. Jen is the co-author of "The Parent's Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood" and the author and a contributor for "Unexpected, Stories of a Down Syndrome Diagnosis." Jen is also the co-founder and Executive Director for the Down Syndrome Diagnosis Network. A former educator and professional development leader, she lives in the midwest with her husband and four children; her youngest son, Owen, has Down syndrome.

Jen is the perfect guest to talk about all things diagnosis! Today, we’re chatting about doctor’s appointments, community groups, and Jen’s incredible work with the Down Syndrome Diagnosis Network. Serving over 9,000 families, Jen Jacob is literally shifting the Down Syndrome narrative, in doctor’s offices and delivery rooms everywhere. What a powerful way to own her influence.

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Connect with Jen Jacob

Connect with Down Syndrome Diagnosis Network

Get your copy of “The Parent's Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood” on Amazon.

Read “Unexpected, Stories of a Down Syndrome Diagnosis” here or order on Amazon.

Watch “A Diagnosis Can Go Well” by DSDN.

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CHECK OUT HEATHER’S NEW BOOK

Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is available for pre-order on Amazon.

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